I now have a local rheumatologist, and I LOVE her! I'm back on my 3 mg of prednisone (yuck) and my Imuran (I was off it while my liver enzymes were sky-high). I'm still on the same dose of plaquenil that I've been on for several year.
This summer, after I got out of my funk, I was doing well. I had bad days, but they were outnumbered by the good days. But, now that it's getting cold, I feel worse. I'm getting several oral and nasal ulcers. My joints are so sore. Granted, when you live with daily pain, you can often push through the soreness. I had to do that during the race today.
When I got home from Iowa this afternoon, I was wiped and had to take a nap. After I woke up from my nap, I realized I kind of overdid it this weekend -- and the weekend is only half done! One of the first things I noticed when I woke up was the presence of that oh-so-lovely butterfly rash. When my face starts to discolor, I know I need to scale back a bit and relax.
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